What Accounts for Differences or Disparities in Pediatric Palliative and End-of-Life Care? A Systematic Review Focusing on Possible Multilevel Mechanisms
Linton and Feudtner
Pediatrics 2008;122:574-582.
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Evaluation of End-of-Life Cancer Care From the Perspective of Bereaved Family Members: The Japanese Experience
Miyashita et al.
JCO 2008;26:3845-3852.
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Is It Feasible and Desirable to Collect Voluntarily Quality and Outcome Data Nationally in Palliative Oncology Care?
Currow et al.
JCO 2008;26:3853-3859.
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Evidence-Based Recommendations for Information and Care Planning in Cancer Care
Walling et al.
JCO 2008;26:3896-3902.
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Quality of dying--how are we doing?
MacLeod
Qual Saf Health Care 2008;17:237-238.
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Quality of dying in a New Zealand teaching hospital
Glasgow et al.
Qual Saf Health Care 2008;17:244-248.
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How Can We Make the Pain Go Away? Public Policies to Manage Pain at the End of Life
Imhof and Kaskie
Gerontologist 2008;48:423-431.
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The End-of-Life Experience in Long-Term Care: Five Themes Identified From Focus Groups With Residents, Family Members, and Staff
Munn et al.
Gerontologist 2008;48:485-494.
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Challenges of Noncancer Patients Transitioning to Hospice
Brunker
Home Health Care Management Practice 2008;20:400-403.
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The Japan HOspice and Palliative Care Evaluation Study (J-HOPE Study): Study Design and Characteristics of Participating Institutions
Miyashita et al.
AM J HOSP PALLIAT CARE 2008;25:223-232.
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Using the LCP: Bereaved Relatives' Assessments of Communication and Bereavement
Veerbeek et al.
AM J HOSP PALLIAT CARE 2008;25:207-214.
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"What Bothers You the Most?" Initial Responses From Patients Receiving Palliative Care Consultation
Shah et al.
AM J HOSP PALLIAT CARE 2008;25:88-92.
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Needs of Elderly Patients in Palliative Care
Wijk and Grimby
AM J HOSP PALLIAT CARE 2008;25:106-111.
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How well do current instruments using bereaved relatives' views evaluate care for dying patients?
Mayland et al.
Palliat Med 2008;22:133-144.
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The effect of the Liverpool Care Pathway for the dying: a multi-centre study
Veerbeek et al.
Palliat Med 2008;22:145-151.
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Dysphagia: Legal and Ethical Issues in Caring for Persons at the End of Life
Wagner
Swallowing and Swallowing Disorders (Dysphagia) 2008;17:27-32.
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Documentation in Palliative Care: Nursing Documentation in a Palliative Care Unit--A Pilot Study
Gunhardsson et al.
AM J HOSP PALLIAT CARE 2008;25:45-51.
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Evidence-Based Interventions to Improve the Palliative Care of Pain, Dyspnea, and Depression at the End of Life: A Clinical Practice Guideline from the American College of Physicians
Qaseem et al.
ANN INTERN MED 2008;148:141-146.
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Evidence for Improving Palliative Care at the End of Life: A Systematic Review
Lorenz et al.
ANN INTERN MED 2008;148:147-159.
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Just Say Die
Berry
JCO 2008;26:157-159.
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A communication model for encouraging optimal care at the end of life for hospitalized patients
Workman
QJM 2007;100:791-797.
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Understanding Hospice -- An Underutilized Option for Life's Final Chapter
Gazelle
NEJM 2007;357:321-324.
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Controlling Death: The False Promise of Advance Directives
Perkins
ANN INTERN MED 2007;147:51-57.
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'No control whatsoever': end-of-life care on a medical teaching unit from the perspective of family members
Workman and Mann
QJM 2007;100:433-440.
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Good death in cancer care: a nationwide quantitative study
Miyashita et al.
Ann Oncol 2007;18:1090-1097.
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Feeling like a burden to others: a systematic review focusing on the end of life
McPherson et al.
Palliat Med 2007;21:115-128.
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Three Methods of Assessing Values for Advance Care Planning: Comparing Persons With and Without Dementia
Karel et al.
J Aging Health 2007;19:123-151.
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End-of-Life Care: Findings From a National Survey of Informal Caregivers
Wolff et al.
Arch Intern Med 2007;167:40-46.
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Clinical and Ethical Issues in Palliative Care
Block
Focus 2007;5:393-397.
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Cost-Utility Analysis of Short- Versus Long-Course Palliative Radiotherapy in Patients With Non-Small-Cell Lung Cancer
van den Hout et al.
JNCI J Natl Cancer Inst 2006;98:1786-1794.
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Palliative care for frail older adults: "there are things I can't do anymore that I wish I could . . . ".
Boockvar and Meier
JAMA 2006;296:2245-2253.
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Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making.
Rietjens et al.
Palliat Med 2006;20:685-692.
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Cardiopulmonary resuscitation: charting a course for the future
Workman
QJM 2006;99:711-715.
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Moving Toward Peace: An Analysis of the Concept of a Good Death
Kehl
AM J HOSP PALLIAT CARE 2006;23:277-286.
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End-of-Life Decision Making, Organ Donation, and Critical Care Nurses
Daly
Crit Care Nurse 2006;26:78-86.
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Who's caring for whom? Differing perspectives between seriously ill patients and their family caregivers
Hauser et al.
AM J HOSP PALLIAT CARE 2006;23:105-112.
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Dying, Dignity, and New Horizons in Palliative End-of-Life Care.
Chochinov
CA Cancer J Clin 2006;56:84-103.
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Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and Recommendations
Meyer et al.
Pediatrics 2006;117:649-657.
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What matters most in end-of-life care: perceptions of seriously ill patients and their family members
Heyland et al.
CMAJ 2006;174:627-633.
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Providing a "Good Death": Critical Care Nurses' Suggestions for Improving End-of-Life Care
Beckstrand et al.
Am J Crit Care 2006;15:38-45.
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Parent and Physician Perspectives on Quality of Care at the End of Life in Children With Cancer
Mack et al.
JCO 2005;23:9155-9161.
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Differences between terminally ill cancer patients who died after euthanasia had been performed and terminally ill cancer patients who did not request euthanasia
Georges et al.
Palliat Med 2005;19:578-586.
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Baby Doe Rules: In Reply
Kopelman
Pediatrics 2005;116:1602-1603.
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Control and end-of-life care: Does ethnicity matter?
Volker
AM J HOSP PALLIAT CARE 2005;22:442-446.
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Palliative and End-of-Life Care for Patients With Cardiopulmonary Diseases: American College of Chest Physicians Position Statement
Selecky et al.
Chest 2005;128:3599-3610.
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Validation of the McGill Quality of Life Questionnaire in home hospice settings in Israel
Bentur and Resnizky
Palliat Med 2005;19:538-544.
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Factors Affecting Long-Term-Care Residents' Decision-Making Processes as They Formulate Advance Directives
Lambert et al.
Gerontologist 2005;45:626-633.
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Improving Processes of Hospital Care During the Last Hours of Life
Bailey et al.
Arch Intern Med 2005;165:1722-1727.
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Pediatric end-of-life care
Crit Care Nurse 2005;25:12-13.
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Beyond Advance Directives: Importance of Communication Skills at the End of Life
Tulsky
JAMA 2005;294:359-365.
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Quality of Dying in the ICU: Ratings by Family Members
Mularski et al.
Chest 2005;128:280-287.
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First Rule: Choose Your Battles Wisely
Hurst
Pediatrics 2005;116:288-288.
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Cancer Patients' and Patient Advocates' Perspectives on a Novel Information Source: A Qualitative Study of The Art of Oncology, When the Tumor Is Not the Target
Vickers et al.
JCO 2005;23:4013-4020.
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Statement on Home Care for Patients with Respiratory Disorders
Am. J. Respir. Crit. Care Med. 2005;171:1443-1464.
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Medical Advance Care Planning for Persons With Serious Mental Illness
Foti et al.
Psychiatr. Serv. 2005;56:576-584.
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Quality of Dying and Death in Two Medical ICUs: Perceptions of Family and Clinicians
Levy et al.
Chest 2005;127:1775-1783.
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Approaching Difficult Communication Tasks in Oncology
Back et al.
CA Cancer J Clin 2005;55:164-177.
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On Saying Goodbye: Acknowledging the End of the Patient-Physician Relationship with Patients Who Are Near Death
Back et al.
ANN INTERN MED 2005;142:682-685.
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Promoting end-of-life care in nursing homes using an 'integrated care pathway for the last days of life'
Hockley et al.
Journal of Research in Nursing 2005;10:135-152.
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Perspectives, Preferences, Care Practices, and Outcomes Among Older and Middle-Aged Patients With Late-Stage Cancer
Rose et al.
JCO 2004;22:4907-4917.
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A Comparative Study of Variables That Have an Impact on Noncancer End-of-Life Diagnoses
Dobratz
Clin Nurs Res 2004;13:309-325.
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Life and Death Decisions: Psychological and Ethical Considerations in End-of-Life Care
SCHOENHOLTZ
Am. J. Psychiatry 2004;161:1934-1936.
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Bridging the Divide: Integrating Cancer-Directed Therapy and Palliative Care
Malin
JCO 2004;22:3438-3440.
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Palliative Care
Morrison and Meier
NEJM 2004;350:2582-2590.
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Perspectives on Quality at the End of Life
Feudtner
Arch Pediatr Adolesc Med 2004;158:415-418.
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The quality of medical care at the end-of-life in the USA: existing barriers and examples of process and outcome measures
Yabroff et al.
Palliat Med 2004;18:202-216.
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Family Surrogate Decision Making at the End of Life: Seeing them Through with Care and Respect
Meeker
Qual Health Res 2004;14:204-225.
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Quality of Life in Hospice Patients with Terminal Illness
Tang et al.
West J Nurs Res 2004;26:113-128.
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Supporting Family Caregivers at the End of Life: "They Don't Know What They Don't Know"
Rabow et al.
JAMA 2004;291:483-491.
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Trends in the Aggressiveness of Cancer Care Near the End of Life
Earle et al.
JCO 2004;22:315-321.
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Family Perspectives on End-of-Life Care at the Last Place of Care
Teno et al.
JAMA 2004;291:88-93.
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Meaning and Agency in Discussing End-of-Life Care: A Study of Elderly Veterans' Values and Interpretations
Young et al.
Qual Health Res 2003;13:1039-1062.
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Valuing the Outcomes of Treatment: Do Patients and Their Caregivers Agree?
Fried et al.
Arch Intern Med 2003;163:2073-2078.
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Measuring and Improving the Quality of Dying and Death
Patrick et al.
ANN INTERN MED 2003;139:410-415.
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Palliative care needs of minorities
Gatrad et al.
BMJ 2003;327:176-177.
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Dying in the ICU: Perspectives of Family Members
Heyland et al.
Chest 2003;124:392-397.
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Hope for the Best, and Prepare for the Worst
Back et al.
ANN INTERN MED 2003;138:439-443.
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Conflicts of Interest: experiences of close relatives of patients suffering from amyotrophic lateral sclerosis
Bolmsjo and Hermeren
Nurs Ethics 2003;10:186-198.
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Ethics and decision making in end stage lung disease
Simonds
Thorax 2003;58:272-277.
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Single- Versus Multiple-Fraction Radiotherapy in Patients With Painful Bone Metastases: Cost-Utility Analysis Based on a Randomized Trial
van den Hout et al.
JNCI J Natl Cancer Inst 2003;95:222-229.
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Professional Organizations' Position Statements on Physician-Assisted Suicide: A Case for Studied Neutrality
Quill and Cassel
ANN INTERN MED 2003;138:208-211.
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Behavioral Science and the End of Life: Introduction to the Second of Two Issues on End-of-life Care and Decisions
WERTH
American Behavioral Scientist 2002;46:323-326.
Audit tools for palliative care services: Identification of neglected aspects of care
Charlton et al.
AM J HOSP PALLIAT CARE 2002;19:397-402.
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Assessment of Patient Preferences: Integrating Treatments and Outcomes
Fried et al.
J. Gerontol. B Psychol. Sci. Soc. Sci. 2002;57:S348-354.
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Introduction: Behavioral Science and the End of Life
WERTH
American Behavioral Scientist 2002;46:195-203.
Religion, Spirituality, and Existentialism Near the End of Life: Implications for Assessment and Application
KAUT
American Behavioral Scientist 2002;46:220-234.
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The Experience of Dying: An Ethnographic Nursing Home Study
Kayser-Jones
Gerontologist 2002;42:11-19.
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Measurement of Quality of Care and Quality of Life at the End of Life
Tilden et al.
Gerontologist 2002;42:71-80.
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"Choice" in End-of-Life Decision Making: Researching Fact or Fiction?
Drought and Koenig
Gerontologist 2002;42:114-128.
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Analyses of nursing home residents in hospice care using the Minimum Data Set
Buchanan et al.
Palliat Med 2002;16:465-480.
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The final month of life in patients with ALS
Ganzini et al.
Neurology 2002;59:428-431.
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The Illusion of Patient Choice in End-of-Life Decisions
Sullivan
AJGP 2002;10:365-372.
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Withdrawal of life sustaining treatment
Sensky
BMJ 2002;325:175-176.
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Responding to Requests for Physician-Assisted Suicide: "These Are Uncharted Waters for Both of Us. . . ."
Bascom and Tolle
JAMA 2002;288:91-98.
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Psychosocial-- spiritual correlates of death distress in patients with life-threatening medical conditions
Chibnall et al.
Palliat Med 2002;16:331-338.
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Physician-Assisted Death -- A Last Resort?
Ganzini and Block
NEJM 2002;346:1663-1665.
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Dignity-Conserving Care--A New Model for Palliative Care: Helping the Patient Feel Valued
Chochinov
JAMA 2002;287:2253-2260.
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