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Experts Wrestle With Social, Ethical Implications of Human Genome Research
Brian Vastag
JAMA. 2001;285:721-722.
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| Since this article does not have an abstract, we have provided the first 150 words of the full text and any section headings. |
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WashingtonAt the end of a 3-day conference last month on the ethical, legal, and social repercussions of the genetic revolution, National Human Genome Research Institute director Francis Collins, MD, PhD, launched into cheerleader mode, urging the assembled researchers to design "truly exciting research agendas." He then rushed off to the White House for a final meeting with President Clinton and the latter's closest health advisors.
That Collins rated a place at the governmental head table is testament to the grandness of the genome project and all of its spin-offs, an enormous academic and industrial complex devoted to mining genomic ore for medical gold.
But as public awareness and the scientific successes of the genome project expand, the range of societal issuesgenetic ownership rights, information privacy, and employment and insurance discrimination, to name just a feware also expanding. Throw in challenges to notions of what it means to . . . [Full Text of this Article]
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