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Providing Information to Parents of Extremely Premature Newborns
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To the Editor: In the Clinical Crossroads article on a woman with an extremely premature infant,1 Dr Richardson discusses health care professionals' responsibilities in providing information and support to families with infants in the neonatal intensive care unit (NICU).
The mother reports being "overwhelmed" with all the horror stories she found on the Internet. Consequently, she relies on staff to determine what information it is necessary for her to have. Richardson agrees that the Internet "is a scary place," and says "it is not kind to bombard people with information." This approach clearly is not in the best interests of the infant and the family.
According to reports from hundreds of families that I have worked with in support programs and research projects, a persistent issue for families is their difficulty in obtaining "empowering information"2 about NICU care. Empowering information is information that is readily accessible, pertinent, and understandable. It . . . [Full Text of this Article]
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A Woman With an Extremely Premature Newborn
Douglas K. Richardson
JAMA. 2001;286(12):1498-1505.
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