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Memories of Loved Ones About Care at the End of Life—Reply
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In Reply: Drs Weiss and Finucane are concerned that our reliance on bereaved family members to report on the quality of end-of-life care is more problematic than we acknowledged. We believe that this is more valid to retrospectively interview bereaved family members than to prospectively assess dying persons. First, a substantial number of dying persons are unable to be interviewed in the last month of life. Additionally, the difficulties of case finding makes a prospective design costly and biased since many persons simply are not counted among the dying until after they have died.
Second, although we collected data about pain frequency, severity, and distress, we chose not to report these measures given research findings reporting low reliability of such measures. Rather, for the area of symptom management, we reported bereaved family members' perceptions regarding unmet needs (eg, dying persons not receiving any treatment or enough treatment for that symptom). . . . [Full Text of this Article]
Joan M. Teno, MD, MS;
Vincent Mor, PhD;
Lisa C. Welch, MA;
Terrie Wetle, PhD;
Renee Shield, PhD;
Virginia Casey, PhD, MPH
Brown University
Providence, RI
Brian R. Clarridge, PhD
Center for Survey Research
University of Massachusetts at Boston
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Memories of Loved Ones About Care at the End of Life
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JAMA. 2004;291(12):1445-1446.
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