From Genetics to Genomics: Ethics, Policy, and Parental Decision-making
Wilfond and Ross
J Pediatr Psychol 2009;34:639-647.
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Disclosure of Research Results from Cancer Genomic Studies: State of the Science
Dressler
Clin. Cancer Res. 2009;15:4270-4276.
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Subjects' views of obligations to ensure post-trial access to drugs, care and information: qualitative results from the Experiences of Participants in Clinical Trials (EPIC) study
Sofaer et al.
J. Med. Ethics 2009;35:183-188.
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The high incidence and bioethics of findings on magnetic resonance brain imaging of normal volunteers for neuroscience research
Hoggard et al.
J. Med. Ethics 2009;35:194-199.
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Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children With Cancer
Fernandez et al.
JCO 2009;27:878-883.
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Communicating Clinical Trial Results to Research Participants
Dorsey et al.
Arch Neurol 2008;65:1590-1595.
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Ethical, legal, and social considerations in conducting the Human Microbiome Project
McGuire et al.
Genome Res 2008;18:1861-1864.
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The search for clarity in communicating research results to study participants
Shalowitz and Miller
J. Med. Ethics 2008;34:e17-e17.
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Incidental findings in human subjects research: what do investigators owe research participants?
Miller et al.
J Law Med Ethics 2008;36:271-279.
Incidental findings in genetics research using archived DNA.
Clayton
J Law Med Ethics 2008;36:286-291.
Genomic research and incidental findings.
Van Ness
J Law Med Ethics 2008;36:292-297.
Incidental findings in pediatric research.
Wilfond and Carpenter
J Law Med Ethics 2008;36:332-340.
Duty to disclose what? Querying the putative obligation to return research results to participants
Miller et al.
J. Med. Ethics 2008;34:210-213.
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Patients need not give consent in all clinical education.
Dinnett et al.
BMJ 2006;332:549-549.
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Offering results to research participants
MacNeil and Fernandez
BMJ 2006;332:188-189.
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Implications of Disclosing Individual Results of Clinical Research
Clayton and Ross
JAMA 2006;295:37-37.
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