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Reye's Syndrome and Salicylates
R. William Soller, PhD
The Proprietary Association Committee on Data Sharing Washington, DC
JAMA. 1987;258(21):3117-3118.
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| Since this article does not have an abstract, we have provided the first 150 words of the full text PDF and any section headings. |
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To the Editor.—
A key aspect of the seven-year controversy concerning Reye's syndrome1,2 has been the growing recognition of the importance of data sharing from publicly funded studies.
Data sharing can be defined as the process whereby access to research data (eg, information in questionnaires and medical records) is granted by study investigators to outside parties for their scrutiny and analysis in order to assess the merits of the study—without unwarranted invasion of a study participant's privacy or interference with an investigator's freedom to publish.
On this issue, the National Academy of Sciences Subcommitte on Sharing Research Data concluded that "sharing data should be a regular practice" and that "data relevant to public policy should be shared as quickly and widely as possible."3 Department of Health and Human Services Under Secretary Don M. Newman stated in February 1987 that "we agree, in principle, that data sharing is important,
. . . [Full Text PDF of this Article]
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